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Anyone here have endometriosis and want to share their journey to diagnosis? I’ve been back and forth with doctors and no one will take me seriously and I think I might have it.
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Anonymous 19h

Not a woman but I have a friend who had it undiagnosed for years and somehow went through extreme pain and thought it was normal to not be able to walk. I remember her talking about how bad her cramps were in high school and I wondered if she had endometriosis but I didn’t bring it up because we didn’t know each other that well and I only got to know in college, plus I wasn’t sure if it was weird coming from a guy.

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Anonymous 1d

You probably dont have it

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Anonymous replying to -> #1 1d

So that’s not a helpful comment and you don’t know me at all

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Anonymous replying to -> #1 19h

What an inconsiderate thing to say given that endometriosis is heavily under diagnosed. If you’re a girl that’s an even worse thing to say.

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Anonymous replying to -> #2 19h

She ended up getting an X-ray of her pelvis after she had a problem with her hip, and that’s how she found out. She brought this up after I mentioned that I had undiagnosed sleep apnea for years and my doctor just thought I wasn’t getting enough sleep, but then her daughter who is a therapist who does CBT for insomnia said I should get a sleep study.

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