Chronic Illness on Yik Yak | On Dr says I’m not hypermobile at all, one says I’m somewhat hypermobile, and one says I’m hypermobile in multiple, but not many, joints. So wtf is it. Who do I trust. Each rated me differently on the Beighton test 😭

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Chronic Illness 13w

On Dr says I’m not hypermobile at all, one says I’m somewhat hypermobile, and one says I’m hypermobile in multiple, but not many, joints. So wtf is it. Who do I trust. Each rated me differently on the Beighton test 😭

🧊

Anonymous 13w

its under diagnosed that’s what it is

Anonymous 13w

Hypermobility is a spectrum (HSD) so you may have hypermobility and maybe even a hypermobility disorder, but maybe not EDS

Anonymous 13w

I had a similar experience. My rheumatologist just said that I have ehlers danlos probably but also I’m not hyper mobile enough bc I only got 2 points on the beighton scale but idek

Anonymous 13w

It’s hard cuz it’s all sorta subjective

Anonymous

#2 13w

Idk anymore bc like I know for sure my knees are hypermobile, but I have a hard time believing any other joint is

Anonymous

OP 13w

Ive seen 3 and one said probably psoriatic arthritis that isn’t detectable yet (even tho my symptoms don’t really match), one who said probably fibromyalgia, and one who referred me for genetic testing- but the kicker is they aren’t accepting new adult patients atm

Anonymous

#4 13w

It’s not supposed to be but it ends up being