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Chronic Illness 17w
just found out i have two variations of the NOD2 gene… meaning i have yao syndrome and crohns🤠🤠 explains SO much since ive been fighting for a diagnosis of both forever
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Anonymous 17w

+ behcets, pots, mcas, and severe heds

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Anonymous 17w

I’m incredibly happy for you!!! I’ve dealt with UC and behcets disease and I can’t imagine navigating either of them without a proper diagnosis. Hoping you’ll get treatment soon <3

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Anonymous replying to -> #1 17w

i had no idea how linked it all can be!! thank you so much🫶🏼 i have a really good rheum and shared all of this with her. i think we may try humira next🤞🏼🤞🏼

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Anonymous replying to -> OP 17w

Humira is a great option! The injections are so so easy

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Anonymous replying to -> #1 17w

glad to hear that! i’ve never taken injections before but i feel like it’ll be wayyyy easier on my stomach and im fine administering it myself

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Anonymous replying to -> OP 17w

it probably will be, unfortunately I failed humira but the pen injection format is my favorite style of medication, even over pills

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Anonymous replying to -> #1 17w

oh no! i hope you found something that works better!! i recently failed otezla (makes sense now knowing i have crohns) and it’s been hard finding something else easier on my stomach

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