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I hate when people tell me that at least it’s just celiacs or just narcolepsy as if i should be grateful. as if I cant want to just be healthy instead of just have celiacs 🙄
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Anonymous 2w

fr i grew up with the it could be worse mindset. but ur struggles are just as valid. and something i tell myself to force me to take care of myself is your not that special. in the sense you deserve to feel normal and be feed what you can eat or be accommodated in how you need to be. you are human and an your struggle matters.

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Anonymous 1w

next time tell them that celiac has a perceived patient burden on the same level as heart failure or end stage kidney disease on dialysis. and dating someone with celiac has the partner burden of dating someone with cancer. downplaying narcolepsy is also ridiculous

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Anonymous replying to -> #1 2w

Literally. Bc why was I shocked when my new doctor was like “I am so sorry you’ve dealt with that for so long. This is unacceptable and we need to improve your quality of life asap. There is no reason we should continue down paths that have failed you.”

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