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Chronic Illness 13w
any people with endo? i’ve been having such bad cramps after orgasming and my period blood suggests low progesterone which is linked to endo. i have an ultrasound in 5 days and i’m nervous
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Anonymous 13w

the ultrasound is for something unrelated but i hope they see something. i’m scared to have yet another diagnosis and have to advocate for myself to get help. i’m so scared to have something that has no cure yet. i’m just scared

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Anonymous 13w

Unfortunately the only way to know if it’s endo for sure is through laparoscopic surgery, and drs are so resistant to doing it. So the ultrasound wouldn’t show that. Keep advocating for yourself and push them to do the surgery for testing if you think it’s endo. You’ve got this, it’s ok to be scared and I hope everything goes well for you

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Anonymous replying to -> #1 13w

thank you. i think i’m going to make a virtual appointment with the center for endometriosis care in atlanta. hopefully they might be able to do an mri to rule out other issues bc i have a lot of health issues. i honestly can’t even believe that $5-21k surgery is the only way to diagnose endo. i don’t even understand how that makes sense for patients to go through. i’m so tired of having to treat myself abs beg for care. i want to feel hopeful but man endo was something i was always terrified of

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Anonymous replying to -> OP 13w

bc of the lack of research and surgery being the only option for diagnosis. the things this country makes chronically ill women go through i would only wish on my worst enemy.

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Anonymous replying to -> #1 13w

do you think my gyno would give me progesterone pills without surgery to confirm, just to see if things get better? i’m already taking all of the recommended supplements bc of my health conditions and i can’t be on birth control because of family history of breast cancer. and my period blood suggests low progesterone

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Anonymous replying to -> #1 13w

i have pretty bad past experiences with drs thinking i’m drug seeking (bc i use cannabis) so i just want to know the best way to bring it up to my drs. in my experience they don’t treat you without a diagnosis so i guess i’m confused how i’m going to get any treatment without the surgery. is endo an exception where drs treat you without confirmed diagnosis based on symptoms? i hope so

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