Chronic Illness on Yik Yak | can anyone share their experience with pain management prescriptions? whether it’s with the meds themselves or the process as a whole <3 i need to explore this option again, but meloxicam made me horribly dizzy. what other options do i have? (for EDS)

Yik Yak

Download

Join communities on Yik Yak Download

Chronic Illness 1d

can anyone share their experience with pain management prescriptions? whether it’s with the meds themselves or the process as a whole <3 i need to explore this option again, but meloxicam made me horribly dizzy. what other options do i have? (for EDS)

Anonymous 18h

I have a prescription ibuprofen (600mg) and a medical marijuana card and it helps SO MUCH. Definitely not for everyone but if you are willing to give it a try and are in a place that offers it, it could be worth trying

Anonymous 1d

i haven’t been on anything other than tylenol/ibuprofen a few times a week (trying not to destroy my organs or develop a worse tolerance). it’s been about 6 years since i was on meloxicam. it worked out really well for me and i was able to participate in lots of things, but it quickly started making me dizzy (apparently an uncommon side effect). i can’t exactly drive to work or function with the room spinning.

Anonymous 20h

i was on meloxicam for years and it did me a world of good. it was for arthritis not EDS tho… the next step for me would be DMARDs or biologics but the disease process for EDS is different. have you spoken to your provider about Celecoxib? it works similarly to Meloxicam but is a different drug that might react differently in your body.

Anonymous 20h

dm me if you need to talk. we are in a very similar boat even with different diseases. also were you taking the Meloxicam with food and water? i used to feel dizzy if i took on an empty stomach. not trying to invalidate the side effect, just trying to see if there’s any way you could take it again and try it. it really is a wonderful drug - im currently in ‘remission’ with my arthritis. i haven’t taken my meds in two weeks no issues as a nursing student who also works part time (27 hours a week)

Anonymous 11h

I have RA and hEDS and I’m about to try prednisone for the first time tomorrow. Shall update on that

Anonymous

OP 1d

my new job requires a lot of standing and i’m getting to the point where i can’t handle the pain anymore. i’d love to hear y’all’s experiences and maybe get some advice while im waiting to see my pcp!

Anonymous

#2 10h

unfortunately, i live in a very conservative state that makes medical marijuana super inaccessible. maybe one day! have you developed a tolerance to the ibuprofen? did your provider set up a plan to mitigate a tolerance or long-term side effects?

Anonymous

OP 10h

Since I use the medical marijuana, I don’t have to use the ibuprofen as much. Unfortunately I can’t have acetaminophen, but because I can mainly use the weed for pain management i use the ibuprofen as a support for when it isn’t quite enough. I haven’t developed a tolerance to it because of that. If it’s muscle pain you can also try cbd icyhot gel rollers (or regular icyhot ones). Those and pain relief body scrubs for the shower have helped a bit too. Sorry this isn’t that helpful

Anonymous

#1 10h

i will definitely look into this! i recently found a pcp who isn’t dismissive, so i’ll be sure to bring this up. thank you!

Anonymous

#1 9h

i can’t say for sure that i always took with with food, but i definitely did a lot of the time. that’s part of why the dizziness was such a mystery. my pcp didn’t even believe me until she googled it. you’re right though, it’s probably worth trying again. my body is definitely not the same as it was when i was 16. thank you so much for your insight!!

Anonymous

#3 9h

please do! i hope it goes well for you!! sending good vibes your way

Anonymous

#2 9h

no, you’ve been very helpful! thank you so much for sharing :) i will definitely look into those!