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Chronic Illness 5w
Anybody else have EDS cause this shit is absolutely the worse
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8
upvote 12 downvote
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Anonymous 5w

I know I need to find a Eds doctor.

upvote 10 downvote
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Anonymous 4w

Solidarity. It’s rough. Hang in there. Do whatever you can for the pain. Even if it only helps a little it’s better to try

upvote 5 downvote
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Anonymous 5w

honestly I was really close to the most final form of giving up, but found a great sports medicine orthopedist who knows about EDS and I can "cosplay as abled" most days now

upvote 4 downvote
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Anonymous 5w

Yes

upvote 2 downvote
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Anonymous replying to -> #1 5w

How do you deal with it I feel like giving up all the time.

upvote 3 downvote
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Anonymous replying to -> OP 5w

Therapy has helped me and look into peer support groups and programs. Connecting with people that have lived experience has helped me a lot

upvote 9 downvote
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Anonymous replying to -> OP 5w

It’s so hard but it’s worth it. I recently changed to a PCP that specializes in helping patients with EDS, POTs, and Lyme Disease. It’s a night and day experience. They are more HAES too

upvote 6 downvote
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Anonymous replying to -> #1 4w

All doctors I’ve called and asked about it they ask me what it is.

upvote 10 downvote