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I hate that every time a doctor tests me for something I’m consistently missing a singular criteria to be diagnosed. hEds: my thumb can’t bend all the way back to my wrist. POTs: my heart rate doesn’t skyrocket when I stand…it plummets when I sit
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Anonymous 15w

The symptoms I had were blamed on celiac, that’s been handled and under control. “Oh actually you’re also anemic and need iron infusions” “okay your iron is good now” … “but doc I’m still having the symptoms” … “well all your labs are normal”

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Anonymous 15w

I thought you didn’t need a perfect score on the Beighton test to get Dx’d with EDS? I think I only got a 7/9?

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