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I know this is a long shot but do my symptoms remind anyone of anything? Tingling in hands, weakness in arms and jaw, tremors that started in RH now in all limbs, migraine, muscle jerks, bad leg tremor after exercise, cold/wet feeling on back/butt/tired
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Anonymous 22h

it could be as simple as low potassium or migraines

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Anonymous 19h

Tethered cord syndrome caused arm weakness, arm tremors, muscle jerks, migraines, leg tremors after exercise, and altered sensation to my back and butt (among many other things)

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Anonymous 12h

My issues regulating multiple of my electrolytes and when they are low they have all of those symptoms most prominent are neurological and muscle and nerve issues.You may have tried this but getting a full electrolyte panel could help 🤷‍♀️ for me it’s calcium and sodium but many electrolytes behave similarly when low

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Anonymous 10h

This sounds like it could possible be a SPS variant called PERM. I have the same symptoms and it’s what I’m being evaluated for right now.

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Anonymous 23h

My trunk also move back and forth when sitting rhythmically, newest symptom. Any test or diagnosis come to mind? Anything helps

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Anonymous 22h

My potassium is fine and we thought maybe vestibular migraines. But it doesn’t explain all my symptoms and my constant tremors and how they slowly spread to all my limbs

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Anonymous 19h

I have had imaging of my brain and my spine that all came out fine, but all of this was prior to the muscle jerking the tremors. When I got those both done, it was due to back pain and leg weakness as well as migraines.

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Anonymous 19h

I was on like eight different types of medications. I was all propanolol, but I just got off of it. My arm and like weakness started around a year ago and then my migraines tremors like twitching and all that started in October and has been progressing. I’ve been chronically ill for like four years though, and has hit almost every single one of my body systems started with Gastro and back pain and a migraine.

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Anonymous 19h

I then started having cardio symptoms, low iron, and low B12 and then now neurological symptoms, but I still have some Gastro symptoms and I have a rare genetic condition called FAP.

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Anonymous 18h

How do you get checked for long Covid? Also, sorry I don’t know why it isn’t letting me respond to each comment. Also, I’m only 20 years old. And this has been going on since I was 17.

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Anonymous 8h

I don’t really have that much pain with my tremors though it’s more just like feeling uncomfortable or unstable. Do you have pain?

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Anonymous 8h

I’ve done a electrolyte panel and it’s come out fine for the most part. I am iron and B12 deficient and have to get infusions for both, but they don’t know why.

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Anonymous replying to -> OP 19h

have you gotten any imaging done like MRI of your head or anything? the tingling and altered sensation is making me think its nerve related but the fact that it's throughout the body rather than just one limb or smth is concerning. on any new meds? any other conditions? how long have u been having these symptoms?

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Anonymous replying to -> OP 18h

Many radiologists don’t know what to look for with tethered cord and there’s also occult tethered cord that doesn’t show in imaging. We thought I had occult tethered cord until I sent my images to a special neurosurgeon that deals with it and she actually saw regular tethered cord that the radiologist missed

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Anonymous replying to -> OP 18h

have you been checked for Long COVID?

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Anonymous replying to -> OP 11h

a lot of doctors don't really know what to look for, and there's not a lot of testing. It's linked to the beginning or worsening of potentially any of 300 symptoms, and older teens/young adults have the highest rates as far as age groups go. Sometimes it's like never fully recovering from COVID, sometimes it's from an asymptomatic COVID infection, and sometimes it takes a few months after an infection to show up.

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