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Chronic Illness icon
Chronic Illness 10w
Finally got a tilt table test ordered!!! So nervous. Should I go dehydrated and sleep deprived (my normal state) or risk a false negative by taking proper care of myself? 😪
#pots#adhd
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Anonymous 10w

I’d say show up in your normal state, gotta show up at your worst honestly. The only time my drs have believed me and seemed concerned is when I showed up to appointments in the midst of a flare

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Anonymous 1w

Update I was not in a flare up for the appt and I REALLY tried to be (apparently it’s not that simple) - but my numbers did meet the criteria. Unfortunately my written report shows something completely different (30 bpm off) vs. the screen I saw in the test so I’m not confident their results were accurate at all…

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Anonymous replying to -> #1 9w

Tysm I’m always scared to show up in a flare because if I go fully nonverbal or have an involuntary sensory overload cry in front of them they start treating me like I’m an idiot

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Anonymous replying to -> OP 9w

Me too I get scared they’re gonna say it’s just anxiety. But I showed up full flare to my last neurology appointment and she was like “like run a bunch of tests”

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Anonymous replying to -> #1 9w

*lets run a bunch of tests

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