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ok op here. the point of this was not to invalidate anyone at all! i’m upset with the medical system and the govt for the poor management of covid and now pots. there are many kinds of dysautonomia and not enough research is being done to help us potsies
i’m genuinely tweaking over this i’ve been saying this for MONTHS about pots as someone diagnosed pre covid
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Anonymous 12w

the only point in including when my diagnosis was is that i’ve used my position to help those who are newly diagnosed. if you’re struggling please don’t hesitate to reach out to me. i have a google doc full of resources and im an open book ❤️

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Anonymous 12w

It’s okay! Sorry for going off on you! We misunderstood what you were saying! I’m glad you’re not like what we thought you were! Thank you for being an advocate! (Also thank you for having the decency to elaborate and apologize instead of just deleting the post)

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Anonymous replying to -> #1 12w

i think deleting the original post would still be a good idea since the video comes across as ableist without the context of the comments that op says are on tiktok

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Anonymous replying to -> #2 12w

Nope. people are grown and if they can’t read the comments to grasp more of an understanding instead of jumping to conclusions that’s their problem not OP🤷🏼‍♂️

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Anonymous replying to -> #1 12w

People should have been asking for clarification to begin with instead of jumping on them. “Im glad you’re not like what we thought” Wtf? 🥴

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