Lately like, if it builds up and I’m trying to walk around and I know I need to sit asap my mom will try and find something for me to lean on or tell me to just squat and like…. I can’t stay still, staying still with weight in it will just keep making it worse until I sit down fully without having to like, make sure I stay upright on a tilted seat or smth. Idk it’s getting frustrating, I’ve had to sit on the floor several times just while getting groceries
FOR REAL! and I am such an advocate for not comparing anyone’s pain (as someone who, like a lot of us in this group, has a pretty SEVERE condition) because if we did then there would be only one person on earth who is allowed to hurt as the person who has it “worst.” but also… god it fucking bugs me when I have a friend that goes “oh yeah my wrist hurts so bad.” okay you hurt your wrist doing something stupid, my body is attacking itself and causing permanent damage for no reason
Ive also come to realize that when people who say they understand, its just a form of acknowledgment and not actually understanding Cause they’ll turn around in the same breath and be like yeah lets go (insert some activity you can’t do cause you’re in pain)!! Like did you even listen to what i just said like at all??
I have h-Eds and am lucky to have had 5 knee surgeries for it (ahahaha funny cause eds makes your skin not heal properly especially after surgical procedures) I feel my screws every day, I told my friend that I felt my screws at the gym and she thought I needed to stop. I told her I feel them by going up the stairs or pivoting and it’s always painful. I’m so glad she understands but most dont