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Hi all! I am so glad I found you all, I have a complex chronic history and wanted to get y’all’s advice!! What are some of your tips and tricks for managing a chronic illness at college? It’s my first time going away and i’m scared managing it! Thank you!
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Anonymous 4w

I got hit my all of my stuff in college, and Ngl I struggled ALOT to manage it while figuring out my limits. But if you’re already aware of your limitations, you should be better prepared than I was. Be ready to have to advocate for yourself for anything and everything. Depending on your school/ teachers. I had teachers who gave me a very hard time (that I should have gone to the accessibility office about) and ones that were extremely understanding and accommodating. So don’t be afraid to ask-

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Anonymous 4w

I had to take 2 gap years due to my health but I’m just happy to find someone else with a complex medical background that is around my age. Recommendations to use: CIDE Center is able to help provide you with information and medical devices and therapies to help manage your symptoms. If you go through DVR Colorado and tell them you want to get services for school they and will often fully pay for medical or adapted devices, they can even pay for therapy. Tell your DVR provider you need CIDE.

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Anonymous 4w

Don’t take no for an answer. The accessibility office may tell you no the first time if they’ve never experienced your case before or if your doctor is bad at writing notes. Don’t accept that. A professor may ignore your accommodations. Don’t accept that. A roommate may try to make you do more than you can. Talk to them and stand up for your health. Advocate for yourself because there won’t be anyone else around to do it anymore

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Anonymous replying to -> #1 4w

-for accommodations, and be prepared to fight for them. I survived my last two years of college taking every extension offered to me, any extra credit to make up stuff I missed, and naps between classes.

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Anonymous replying to -> #1 4w

Oh and try to join clubs and if there is one for people with disability give it a shot bc you might be able to find some community.

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Anonymous replying to -> #1 4w

To echo what you said: as a chronic doormat I really had to learn how to advocate for myself in college. The sooner you set up accomodations the better as well. I majorly procrastinated it and was convinced I didn’t need them, and the only reason I scraped by when my health issues started to delve into more severe territory is because I go to a teensy little private college where my department professors and I are close and they knew I wasn’t skipping class for the love of the game.

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Anonymous replying to -> #4 4w

I didn’t really advocate for myself as much as I needed to this past year and I think the stress of everything just made my illness worse. My symptoms culminated until I got so bad I had to take a leave of absence. If you go to a university where one on one with your professors is common, I’d recommend establishing relationships early on and explaining (in as much detail as you’re comfortable with) how your disease impacts you and how it may affect your performance in class. If you go to office

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Anonymous replying to -> #4 4w

hours and show to them your effort and motivation to learn, professors tend to be much more accommodating and understanding.

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