
i have celiac disease which takes 6-10 years to get diagnosed on average. pots has very obvious symptoms and rudimentary ways at home to test. celiac disease has 200+ symptoms that can affect any organ system and drs can never put the pieces together. you have to go under anesthesia to get diagnosed . i don’t qualify for medicaid. but i’m so happy for you that you don’t understand my experiences. my drs blamed me for my symptoms and discharged me multiple times as i was dying.
drs actually gave me treatments that made me worse and did damage that’s taken me years to recover from. i’ve been in this alone. it was so bad at one point i experienced pots symptoms so severe i couldn’t walk and i recovered from that out of sheer spite. there’s no medication to help me only an gf expensive diet and supplements
Also in my state when my grandmother was on Medicare she was able to get at home dialysis fully covered, diabetes treatment fully covered , at home care and the government paid my parents to take care of her . And at the end covered her hospital stays and nursing home even if it was shit one .