like am i suggesting this bc it’s helpful to them? or just bc it fits their symptoms and i’m scared of someone else getting hurt from misdiagnosis or no diagnosis at all. the conditions i have are all deadly if gone undiagnosed so i feel a sense of urgency.

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As someone on the other end, I feel this: I legit went to my doctor and went “hey I’m realizing I’ve been showing signs of POTS and EDS my entire life” and she was like “I’d bet money you have it but insurance won’t cover testing because it’s so intensive and rare” and that was all that ever came of it.

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