Anonymous #1 7w

But just know, you aren’t alone in this, I hope you they can help find you a diagnosis, eds or not. I’ve heard they are very thorough with their questions and evaluations (at least the place I’m going to, but it seems like that’s also a geneticist thing).

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Anonymous #2 6w

He diagnosed me with hyper mobility syndrome, said it was a precursor to eds and to start swimming, taking a few supplements and going to pt for joint pain, and to not do any high-impact sports. Doesn’t answer all of my symptoms, but it’s something for now. Kind of sad though, had a bit of a pipe dream that I might get into some really cool martial art like muay thai at some point, but now I know it would likely be bad for me in the long run. Swimming’s cool too though

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Anonymous OP 6w

Idk how it can be a “precursor for eds” ?? Eds is genetic they just haven’t found the marker for hEDS. You’re born with it (no hate to you just confused about the doctor)

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Anonymous #3 6w

To clarify, you can’t have hypermobility syndrome turn into EDS. EDS is genetic. You can have hypermobility spectrum disorder and not have EDS, but if they diagnosis you with EDS it was always EDS

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Anonymous #3 6w

Maybe he just phrased it weirdly? Idk, I was also a bit confused since I was pretty sure eds was a fundamental genetic issue with your connective tissue. I’m really bad about not questioning doctors or standing my ground with them though, I’ve got a very bad case of “they’re the doctor, they know what they’re doing, I shouldn’t question them

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Anonymous OP 6w

Forgot the “ at the end

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Anonymous OP 6w

That’s real, I’m bad at advocating for myself as well. His suggestions are good tho and swimming should help a lot with joint issues!

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Anonymous #3 6w

Did the Dr send you off for blood work?

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Anonymous #2 6w

He thought it was unnecessary, but said it was perfectly valid if I still wanted to and I did, I just need to go to the hospital to get that done now at some point

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