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Chronic Illness icon
Chronic Illness 5w
i'm an incoming college freshman and my hEDS symptoms have gotten worse over the past year (with no help from docs) y'all got any tips or advice on how to get thru the year?
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Anonymous 5w

creatine is supposed to help fascia and energy

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Anonymous 5w

Honestly, naps were a huge help to me. See if you can get accommodations for heds and get a dorm right next to your classes so you can go to your room and take a nap in between

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Anonymous 5w

Get a mobility aid if you don’t already!! They’ve helped so much with the fatigue especially, I have a cane and a pair of forearm crutches but my go to has really been just the single crutch, it’s got more stability than a cane alone. Life changing. Also lots of naps, accommodations if you can get them, and not trying to force yourself to do stairs and things to save time or “act normal.” Scheduling time for meals at the dining hall after class/other scheduled things helps a lot as well

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Anonymous 5w

which symptoms are you having difficulty with?

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Anonymous replying to -> #1 5w

bad fatigue and feeling like shit if i haven't eaten in the past two hours :/ my other symptoms have been pretty manageable lately

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Anonymous replying to -> mother_russia 5w

Also keeping snacks like granola bars with you in your book bag so you always have something to be snacking on. You can also talk to the accommodations center about making sure it’s okay for you to keep food on you at all times even in classes.

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Anonymous replying to -> mother_russia 5w

You could ask about vacant rooms in buildings you have classes in and keeping a sleeping bag with you to take naps in an empty classroom if you are comfortable with that or don’t think you could make it back to your dorm.

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Anonymous replying to -> mother_russia 5w

Personally I just ALWAYS kept snacks on me like granola bars, chips, fruit snacks, jerky, etc. and would drink an energy drink through my classes to stay awake through it and then get back to my dorm and crash.

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Anonymous replying to -> mother_russia 5w

I’m on a small enough campus that it’s not a risk but I’ve been known to nap on the couches in hallways and stuff

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Anonymous replying to -> #4 5w

I love that you were able to do that!

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Anonymous replying to -> #5 5w

Since I can never convince my body it’s worth the energy to leave my building just for food. Also keeping nutritious food on hand in your space and with you in general is good, as well as water. I’ve also had luck with KT tape and compression gloves for hand/wrist pain that I get from writing and typing for a long time.

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