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I’m curious…how many of yall are actually diagnosed VS self diagnosed? And what is yalls opinions on self diagnosis? (This is for autism specifically)
#poll
Diagnosed
Self diagnosed
In the process of getting a diag-
133 votes
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Anonymous 18h

somewhere in between bc i’ve been told by professionals they and even colleagues think im autistic but also that getting tested may be a pain that’s not worth it

upvote 19 downvote
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Anonymous 18h

I think self diagnosing can be good if you can’t afford an actual test but otherwise its bad

upvote 10 downvote
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Anonymous 17h

I really want to be friends with all of the people I meet on here. Please DM me if you’re interested. I really want more autistic and neurodivergent friends.

upvote 5 downvote
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Anonymous 16h

I was tested and told I'm autistic, but this was like the same month RFK announced he wanted to do the autism registry so my dr kept it off the books

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Anonymous 13h

Doctors aren't gods and shouldn't get to gatekeep the label. I thought I was autistic and now I don't - i'm GLAD I don't have a formal stamp on my record - even if I "do" I feel much more happy and comfortable not thinking about it -- though I certainly am ND of some type I can tell from my brain that I live in all the time

upvote 1 downvote
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Anonymous replying to -> #2 18h

Why would it not be worth it? Do you think?

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Anonymous replying to -> gorillasarecool42 18h

Agreed but maybe just say you “suspect” you have it rather than “I have it” idk

upvote 7 downvote
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Anonymous replying to -> OP 18h

Yeah

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Anonymous replying to -> OP 18h

bunch of time money and effort to find a good diagnoser who actually knows how to work with adult women of color which is apparently really difficult all to tell me something i’m already sure about and i’ve heard the most it would practically do for me is give me accommodations in school that i already have

upvote 9 downvote
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Anonymous replying to -> #2 18h

That’s about how I feel too. I don’t want any accommodations or anything, I just like using the coping skills other autistic people use that help me, which I don’t need a diagnosis for. If ever the need arises for me to need a confirmation, I might consider it.

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Anonymous replying to -> #2 18h

True but it opens so many other windows as well like in job settings!

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Anonymous replying to -> #3 18h

I mean totally fair, you can use the coping skills and stuff without saying you’re autistic (if you aren’t diagnosed) and can still say you might have it or suspect you do.

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Anonymous replying to -> OP 18h

it can also hinder you in job settings consider how many people would discriminate against me

upvote 4 downvote
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Anonymous replying to -> #2 18h

Yes but that’s illegal and if your boss would tell people that’s also illegal

upvote 4 downvote
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Anonymous replying to -> OP 18h

dude do you seriously think anti discrimination laws stop employers and coworkers from discriminating

upvote 4 downvote
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Anonymous replying to -> #2 18h

I just said it was illegal not that they wouldn’t but pop off I guess

upvote 4 downvote
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Anonymous replying to -> OP 17h

why would i care that it’s illegal if it doesn’t make a difference why even mention it

upvote 3 downvote
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Anonymous replying to -> #2 17h

Cause you can sue them idk bro you seem mad for no reason

upvote 5 downvote
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Anonymous replying to -> OP 17h

Yes exactly

upvote 8 downvote
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Anonymous replying to -> #2 17h

Omg so true. They understand white men a lot more.

upvote 6 downvote
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Anonymous replying to -> #4 17h

What

upvote 1 downvote
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Anonymous replying to -> OP 17h

i’m not mad everything i write is to be heard in a flat vaguely confused tone but like fr when someone discriminated it’s not like they’re gonna say they’re doing it you can make up any reason to discriminate. it’s like impossible to get evidence of it in 99% of cases there’s not actually much you can do other than hide it from the jump

upvote 2 downvote
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Anonymous replying to -> #2 17h

You sounded like you were coming at me, thanks for the clarification on your tone. Also, true yes but hopefully there are good people in this world who wouldn’t do that to you. Plus you should work a job that understands you…not makes you fit them.

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Anonymous replying to -> OP 17h

#2 said that a lot of people won’t understand autism in women of color. Normally autism is associated with white boys.

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Anonymous replying to -> #4 17h

Oh oh yes ok I see

upvote 1 downvote
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Anonymous replying to -> OP 17h

As a non white man I have definitely seen this. Not to mention most women are diagnosed later. I have a friend who was so obviously autistic to me in high school (woman of color) as an autistic person myself, yet somehow she wasn’t diagnosed. People were so mean to her because she was socially unaware, and she was treated as an outcast. People didn’t do the same to me because it’s more socially acceptable for guys to exhibit autistic traits.

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Anonymous replying to -> #4 17h

I also have another female friend who was diagnosed the same age I was and she also experienced more bullying in high school compared to me. I witnessed this with both people first hand, as all 3 of us went to the same high school.

upvote 6 downvote
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Anonymous replying to -> #4 17h

That makes sense yeah, autism is viewed differently in different cultures and whatnot. It can be harder for people to get diagnosed if their parents don’t believe in it culturally (this is what happened to my ex who was Mexican)

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Anonymous replying to -> OP 17h

Genuine question because I’m curious about your thoughts on it: Why do you believe there should be a distinction between those who are medically diagnosed vs self-diagnosed?

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Anonymous replying to -> OP 14h

“without saying you’re autistic (if you aren’t diagnosed) and can still say you might have it or suspect you do”? if they know themself to be autistic then there’s nothing wrong with them saying that they are autistic, regardless of whether they’ve been professionally diagnosed

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Anonymous 13h

for one, “determined to be Not Autistic by a doctor” is objectively not the same as “not officially diagnosed” for two, even if someone Has been “determined to be not autistic”, it’s not at all uncommon to seek a second opinion when one medical professional’s assessment does not feel accurate to you. that’s a normal part of healthcare because being a licensed professional does not automatically mean being correct 100% of the time

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Anonymous 13h

no one implied that doctors and diagnoses are meaningless, that’s a misinterpretation you’re projecting onto what’s been said and what #10 said about “gatekeeping” does not in any way contradict “not everyone is autistic and that’s okay”. the point is simply that 1) the institutional authority required to sign off on a diagnosis is locked behind an incredibly expensive academic paywall, i.e. By Definition it is gatekept, and 2) autistic people can know themselves to be autistic

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Anonymous 13h

like, you don’t spontaneously become autistic on the spot within the very moment that a licensed professional diagnoses you—you were autistic prior to being diagnosed as well if you had not sought professional diagnosis, that wouldn’t magically make it so that you Weren’t autistic… you would just be an autistic person without an official diagnosis. which, to be clear, that’s also what every diagnosed autistic person is before they get diagnosed

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Anonymous replying to -> OP 11h

One of the PhD students in the lab I work in is Mexican and surprisingly there are a lot of things in common with Indian culture. I’m Indian but am also fluent in Spanish. I need Spanish for some of the research I do. My parents were pretty supportive though, and they got me diagnosed because I advocated for myself. I wonder if my teacher would’ve treated my symptoms differently if I was a girl

upvote 1 downvote