Anonymous #1 9w

And there’s no wrong answer to this. It depends on the level of pain and the severity of memory loss, your choice is valid no matter what it is 🫶🏼

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Anonymous #1 9w

Thanks for taking the time to comment. I’ve gone to multiple doctors and have tried numerous pills. The only combo that’s worked for my epilepsy & chronic migraine has been Lamotrigine, zonisamide (the prescribed level for headaches, not seizures), and Nurtec. I’ve tried getting off of Zonisamide numerous times but have to keep on going back for headache control. I’ve been off of it for a month now, but I have such bad migraines now that they’ll literally wake me up in the middle of the night

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Anonymous OP 9w

I’ve been on it for 13 years now, and most recently on the minimum dosage. Idk. I don’t think I can deal with the pain. I can take rizatriptan as an emergency pill for the migraines, but I hate doing that since it knocks me out for the day. Lamotrigine messes with my memory too, so I’m already screwed I guess

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Anonymous OP 9w

Unfortunately it really seems like you have to choose the lesser of two evils here. I’ve taken meds before that messed with my memory for short term usage and it ACTUALLY sucked. I can’t imagine what you have to go through, and I wish I could be of more help. I also recently had a migraine that lasted upwards of a month with minimal to no relief so I understand how miserable it can be to an extent. Hopefully one day you’ll find a med combo that will work for you!

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Anonymous OP 9w

You can always opt into clinical trials if you’re truly miserable. They could make it worse or they could make it ten times better, always do your share of studying before you try them, but it is an option

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Anonymous #2 9w

Personally when I was at school (college) the memory loss side effect was a bigger issue and I was struggling so bad in my classes I went off my old meds and just powered through with painkillers. But during my medical leave when I was just working a mindless job, the memory loss was less of an issue.

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Anonymous #2 9w

Maybe try making a list of pros and cons for both options? Sometimes that’s helpful

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Anonymous #2 9w

I have not heard of that, I’m going to look it up & talk to my doctor about it, thank you! Sorry you went through these challenges too, especially in college 🫠

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Anonymous #3 9w

I know this is for a conversation with my doctor, I have an appointment in a few hours but I want to see what others would do in this situation. I keep on going back & forth. The memory issues are hard to cope with & can be embarrassing, but I’m going to have them regardless bc of my other medicine, but I don’t want to make it worse. Also don’t want to live in pain because that also limits my quality of life. This decision sucks lmao

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Anonymous #2 9w

So I got on an injection medication! Hopefully it’ll work!

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Anonymous OP 9w

🤞hopefully

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